2022-03-21 - OBSERVABLE Meeting

Welcome & apologies

@Daniel Karlsson

Remember recording!

Conflicts of interest

@Daniel Karlsson

None stated!

Minutes from previous meeting

@Daniel Karlsson

Social Determinants of Health

@Jim Campbell

2022-02-21:

Presentation of Race and Gender assignment observables.

@Alejandro Lopez Osornio in latin america race typically is not recorded, with few exceptions. 

@Karim Nashar patient-reported, self-assigned, where is that seen in the modeling? It is represented through Interview technique.

@Daniel Karlsson recording race is illegal in many European countries.

2022-03-21:

Presentation of proposals for modeling of race, gender, and sex observables.

For all these observables, a general pattern of role assignment was used, i.e. race is assigned for a person by an agent, e.g. the community. There was agreement in the group that this pattern was useful.

For gender and sex observables, there was discussion about the relation between the two. Most agreed that sex and gender are distinct entities, where one is not a kind of the other. There are also many variants of both gender, e.g.  and biological sex, e.g. fenotypic (external genitalia, hormone levels) or genotypic.

Further, other standards organizaiton is doing work, paritcularly in the sex and gender area, indluing the HL7 Gender Harmony project https://confluence.hl7.org/display/VOC/The+Gender+Harmony+Project and the ISO TC 215 work on "Sex and Gender in Electronic Health Records" https://www.iso.org/standard/83431.html

Scale Observables

@Daniel Karlsson

2022-03-21:

Scale observable pattern https://docs.google.com/presentation/d/1YYswiRmsHBx7iq7mWrzOwDthfWlRDQQQuQI56Ut4oOY/edit?usp=sharing

Agreement to keep to existing representation of assessment scale observation in SNOMED CT (for now): 1 assessment scale concept, 1 procedure "assessment using X", and 1 observable per reportable (sub)scale value, given that there is permission from IP owner.

@Jim Campbell to model risk score concepts/sleep scale observables.

London meeting

@Daniel Karlsson

Potentially a face-to-face meeting in London April 2-7 2022 https://www.snomed.org/news-and-events/events/business-meeting 

• More focused meeting

  • E.g. E2O and scale observables

  • MBH observable

Gender and race observables

@Jim Campbell

2022-02-21:

Presentation of Race and Gender assignment observables.

@Alejandro Lopez Osornio in latin america this typically is not recorded, with few exceptions. 

@Karim Nashar patient-reported, self-assigned, where is that seen in the modeling? It is represented through Interview technique.

@Daniel Karlsson recording race is illegal in many european countries.

Impulsivity observable

@Piper Ranallo PhD

Next meeting

@Daniel Karlsson

Next meeting is March 21 2022 20.00 UTC.

Agenda:

• Gender and race (assignment, identity) observables @Jim Campbell

• Interpretation (ordinal scale) observables and ratios @Karim Nashar