Intentional Simulation of Illness
OVERVIEW
This page is used to organize CRG work on clinical findings and observable entities related to intentional simulation of illness.
Current nosologies classify clinical findings and disorders as:
Factitious disorders (ICD11, DSM5)
TERMS
Factitious disorder
Factitious disorder imposed on self
Factitious disorder imposed on another
Factitious disorder by proxy OUTDATED
Malingering
Simulation of illness
Feigning illness, feigning symptoms
Munchausen syndrome OUTDATED
Munchausen syndrome by proxy OUTDATED
MAJOR FUNCTION, PROCESS, AND OTHER OBSERVABLE ENTITY CONCEPTS
Major Concepts | Commonly Used Terms | Working Definition |
|---|---|---|
STAKEHOLDER GROUPS AND SUBJECT MATTER EXPERTS
Name | Type | Description | Notes |
|---|---|---|---|
RESOURCES
Name | Type | Description | Notes |
|---|---|---|---|
DSM-I, DSM-II, DSM-III, DSM-III-R, DSM-IV, DSM-IV-R | Nosology | Previous editions of the the Diagnostic and Statistical Manual of Mental Disorders (DSM) | Useful for understanding the evolution concepts and specific terms used at different points in time |
DSM-5, DSM-5 SCID | Nosology | Current edition of the Diagnostic and Statistical Manual of Mental Disorders (DSM) | Useful for understanding terms and concepts as they are currently designed to be used by clinicians |
Nosology | Preview editions of the the International Classification of Disorders (ICD) | Useful for understanding the evolution concepts and specific terms used at different points in time | |
Nosology | Current edition of the the International Classification of Disorders (ICD) | Useful for understanding terms and concepts as they are currently designed to be used by clinicians | |
UMLS | Meta-Terminology | Unified Medical Language System (UMLS) |
PROJECT MILESTONES AND STATUS
Objective | Action Item | |
|---|---|---|
| 1 | Define scope of work | Identify the major concept(s) around which to organize a manageable project (scope of work) (artifact: mabh-crg concept plan) Complete the major concept table and iteratively update as project progresses (CRG to finalize the definition for SNOMED once all research has been completed) |
| 2 | Understand uses cases | Identify any non-standard use cases or pain points in research domain (artifact: mabh-crg use case document) Identify any non-standard use cases or pain points in clinical domain (artifact: mabh-crg use case document) |
| 3 | Understand major conceptualizations of the concept | Perform environmental scan to identify major theoretical models of construct/concept domain (artifact: mabh-crg theoretical model document) Perform environmental scan to identify disorders and clinical variables relevant to the concept domain (artifact: mabh-crg clinical model document) Perform environmental scan to identify existing explicit representations of concepts in the domain in terminologies (nomenclatures, nosologies, classification systems, controlled vocabularies, and ontologies) (artifact: mabh-crg umls analysis matrix, mabh-crg terminology matrix) |
| 4 | Establish contact with key stakeholders and other potential project contributors | Perform and environmental scan to Identify key stakeholders in the basic research, clinical research, clinical practice, and patient advocacy domain (artifact: mabh-crg stakeholder document) Create and implement a plan for engaging stakeholders willing to participate in the CRG for the duration of the specific concept review, either on calls or via discussion forum, or to provide the following: Stakeholder experience related to specific pain points or use cases in the domain Copies or screenshots of note templates, clinical notes, flowsheets, order sets, research protocols, other |
| 5 | Understand how concepts in the domain are currently represented in SNOMED | Review concepts in observable entity hierarchy Create dot diagram of current state Create observable entity spreadsheet Review concepts in clinical finding hierarchy Create dot diagram of current state Create observable entity spreadsheet |
| 6 | Perform gap analysis | Analyze concepts in observable entity hierarchy Create observable entity spreadsheet Create dot diagram of current state Perform review of dot diagram to identify potential duplicate, outdated, missing or inaccurately modeled concepts Update spreadsheet with changes including all defining relationships Analyze concepts in clinical finding hierarchy Create observable entity spreadsheet Create dot diagram of current state Perform review of dot diagram to identify potential duplicate, outdated, missing or inaccurately modeled concepts Update spreadsheet with additions or changes to concepts, including all defining relationships Identify missing concepts in other hierarchies (e.g., qualifier value, body structure) required to completely and accurately model observable entity and clinical finding concepts Create explicit, narrative definitions for all concepts |
| 7 | Create new and modify existing concepts in SNOMED | Submit request for changes through CRS system or via template worksheet |
| 8 | Disseminate information about changes to SNOMED for concepts in the domain |
LINKS TO SITE MATERIALS
WORK PAGES
DISCUSSION THREADS
GRAPHICS AND GLOSSARIES
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