Clair's Outline for Terminology
Area specifically to post updates to the guidelines for consideration for updates to SNOMED in regard to gender, sex, and sexuality.
Comments
Updated with partial changes based on today's call for modeling perspectives, with changes to be made noted (will be finalized in 6.10). The document is necessarily incomplete, please continue to comment if you have any questions or concerns about usages in various spaces.
(Version 6.9). This version incorporated feedback based on last month's and this month's meeting, as well as feedback from the Queer PhD Network (~7,800 members), Trans PhD Network (~1,800 members), and the International Transgender Health (~8,300 members) groups on Facebook, as well as to select members of the American Medical Informatics Association (AMIA) community, thereby including perspectives of LGBTQIA+ persons and their providers. I will be sending out version 6.10 to several intersex advocacy organizations once I have finished building out that part of the hierarchy, including interACT, interConnect, Organisation Intersex International Chinese, OII Europe, ILGA Europe, and ILGA World. Please let me know if you have other organizations in mind that you would like me to reach out to.
HI Clair Kronk,
I have been reviewing your terminology document version 6.1, which I know isn't the newest version, but is current enough for the purposes of the questions. Looking at the Recorded Gender finding group starting on page 12, these concepts appear to be best implemented as either a LOINC code (United States) that is associated with a nominal answer list or as a SNOMED Observable entity.
For argument sake, lets assume that "Recorded gender with primary health insurance" is LOINC code 1234-5. When constructing this LOINC code, the authoring terminologist ask you what concepts from this document should be represented as the selectable list of responses for the code. This answer list may have a binding strength of example (self-explanatory), preferred (The terminology recommends using this list but you don't have to), or normative (Only this answer list may be used in association with this LOINC code.
From an authoring perspective, which concepts from which section of the snomed_recommendations_v6.1 20210301.docx would you instruct the author to use when creating a normative answer list for LOINC code 1234-5 | Recorded gender with primary health insurance |?
For example, would the answer list include concepts from the "Gender Assignment finding outline" beginning on page 19 or values from another part of the purposed hierarchy document?
While this same use case could have been constructed using a SNOMED Observable entity concept, LOINC would be authoritative in the US and the answer list artifact that exists in LOINC expressly lends itself to this question. I also think the answer to this question lends itself to resolving the issue we struggled with in yesterday's meeting.
Thanks
John
(Version 6.4)
Individual changes discussed will be made from now on using a "UPDATE DD-MM-YYYY" system. So if a change was proposed on today's call, it would be indicated using "UPDATE 03-17-2021".
Please include individual discussions about the content of the document in other discussion topics. If a discussion topic does not seem applicable, please create a new discussion topic and tag me with the changes you are requesting or any comments/concerns/questions, etc. I am also available at my institutional email, kronkcj@mail.uc.edu.