Retina-related missing terms in SNOMED

I know the initial focus of the CRG is on glaucoma, but Cindy Xinji Cai (Unlicensed) and I were hoping we could maybe at least initiate some conversation about some retina terms that have been found to be missing from SNOMED. This is work coming out of the OMOP Retina group that Cindy leads. One of the workgroup members extracted all of the diagnosis/condition terms from the Ryan Retina Atlas, one of the premier information resources in retina that has an international set of editors. Presumably these conditions/terms should be represented in standardized vocabularies. The following terms were felt by the majority of the workgroup (which includes retina specialists from several academic centers in the US) to be important for representation but are currently not codified in SNOMED: 

• Nonexudative neovascular age-related macular degeneration

• Paracentral acute middle maculopathy

• Glaucoma drainage implant endophthalmitis

• Lamellar macular hole

• Nonproliferative sickle retinopathy

• Submacular hemorrhage

• Choroidal granuloma

• Eales disease

• Pachychoroid neovasculopathy

• Pachychoroid pigment epitheliopathy

• Peripheral exudative hemorrhagic chorioretinopathy

• Nongeographic atrophy

Elaine Wooler , we just wanted to put this forward for discussion... are the above fairly straightforward to codify? What information would you need? That way we can work on assembling that information among the retina group and and can have that ready for you, even if need to wait until after we do the glaucoma-related work first. Thanks!

I think it would be good to tackle some important missing terms in other fields as we go along, if possible.  Some important ones in that list!  Thanks

Agree, definitely worth adding any obvious missing terms. 

FYI, there is an existing term Eales' disease (disorder) SCTID: 54122009. Some others might also already exist with slightly different but essentially synonymous terms and would be easy enough to add additional synonyms, but am sure Elaine or one of her SNOMED colleagues would be able to check and advise.

"Glaucoma drainage device related endophthalmitis" once created would be a nice addition to our preferred glaucoma disorder terms!