2026-04-13 - Mental and Behavioural Health CRG

Welcome

Piper/Jan Ivar

10 mins

• Attendees list

• Introductions

• Note:

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Administration

Piper/Jan Ivar

5 mins

• Apologies

• Declarations of Interest

Quality initiative and pilot

@Piper Ranallo PhD @Elaine Wooler @Hanne Fjeldstad Johansen @Jan Ivar Ernø

10 mins

10 mins

10 mins

10 mins

10 mins

10 mins

10 mins

10 mins

Brief introduction on the CRG and previous activities (Piper)
Introducing the need for the quality initiaitve and the dilemma of structuring terms related to mental health (Jan Ivar)

Comments and questions

Presenting the proposed survey questions for the present and potential relevant users (Hanne). Survey has two types of questions: 1. How mental health terms are used in the informations systems and by the clinicians. 2. How specific terms are interpreted and used in different local and national settings.

Comments and questions

The work so far and possible approaches Hanne

Comments and questions

How we will further capture definitions - identify national/local differences (Elaine)

Break

Part II - General CRG activity

Recent work and WIP

@Piper Ranallo PhD

10 mins

Presentation of recent acitivites and topics discussed in the CRG (Piper, Elaine and Jan Ivar)

Asperger syndrome within ASD - should we deactivate outdated terms that are still used in language?

@Elaine Wooler @Jan Ivar Ernø

15 mins

Presenting the issue raised from member countries.

23560001 |Asperger's disorder (disorder)|

Discussion

Substance Misuse Terminology

@Elaine Wooler

20 mins

Discussion on the representation of “substance misuse” in SNOMED CT, recognising that “misuse” is variably interpreted in English and across languages. The Mental & Behavioural Health CRG has previously suggested “non-recommended use of [substance]” as a potential approach; however, some countries require clearer representation of risky use. One option is alignment with the ICD-11 concept of hazardous substance use, defined as a pattern of use that increases the risk of harm but has not yet resulted in actual harm. This could be represented as - At increased risk of harm due to use of X substance. This is consistent with other risk concepts in SNOMED. Further input is needed on appropriate terminology to support consistent international use.

Relevant SNOMED hierarchy: 228366006 |Finding relating to drug misuse behavior (finding)|

Discussion

Neurocognitive Disorders – DSM-5 Style Concepts with Severity and Possible Causality

@Elaine Wooler

10 mins

The US NRC has received multiple requests for neurocognitive disorder concepts expressed in a DSM-5 style, combining disorder, severity, and uncertain causality (e.g. possible or probable Alzheimer’s disease). These raise concerns including representation of severity (unless universally understood) expression of uncertain causality, and excessive precoordination.

There are also terminology alignment challenges between DSM-5 and ICD-11. DSM-5 replaces “dementia” with “major neurocognitive disorder” and uses certainty qualifiers (e.g. possible or probable Alzheimer’s disease), whereas ICD-11 retains “dementia” and represents aetiology using “due to” phrasing.

Examples (full list in link below)

Major neurocognitive disorder due to possible frontotemporal degeneration, moderate (disorder)

Major neurocognitive disorder due to possible Alzheimer's disease, mild (disorder)

Have other countries had similar requests or queries relating to this?

Forum Posts

@Elaine Wooler

2 mins

Future work topics (brief information)

@Piper Ranallo PhD @Jan Ivar Ernø

5 mins

Status for the “assessments instruments model”

Other business

Next meeting

@Elaine Wooler

2 mins

• 1 June 2026 14.00 UTC